Featured

Wow! Time really does fly…….

Wow! Time really does fly…….I was sitting here thinking what should I do since we are stuck at home with the pandemic of Covid 19 and thought when was the last time I wrote? I couldn’t remember the last time I wrote on my blog, so, I decided to look at the website and see when was the last time I posted, after I looked up the saved password to get in haha. Anyway I finally logged in and I couldn’t believe how long it was…….2015!!!! 5 yrs ago!! I couldn’t believe it! Like seriously! 5 yrs has gone by and I hadn’t touched this blog. Then I checked my “about me” page and saw this…

I am a happily married 30 something, who is a mother to three wonderful children, I married my best friend in 1994.  I am a wife, mother, who loves to run, read , learn new things, speak my mind , would love to become an inspiring blogger/writer someday, and is a Sudden Arrhythmia Death Survivor.

With this blog, I hope to reach out to people on many levels, from topics with others that suffered Sudden Arrhythmia Death Syndrome (SADS), learning to live with an ICD (Implantable Cardioverter Defibrillator), just life in general with kids, health and running.The possibilities are endless!

Thanks for taking the time to get to know me!

S

I laughed out loud when I saw 30 something, First of all, I am no longer in my thirties, I am now in my forties (not going to lie I was feeling a little bit old seeing that) haha.  So, when I have saw that I knew I definitely have to update that and thought maybe it was time to post something new too, maybe a little update in my life?? Because a lot has changed.

Like I said I am no longer in my “30’s” I am now in my “40’s” haha so if you need to do the math good luck, a woman never reveals her age. Still married, still have 3 children but 2 of them are married now, and I am a grandmother, well Omi they call me, I have 2 granddaughters and they are my world! Which I am terribly missing them due to this Covid 19 we are going through right now. Hope to get to see them and squeeze them tight soon. Now, lets see what else, Oh! I no longer run, unfortunately I am no longer allowed due to the heart and ICD, but I have come to terms with it and actually enjoy walking, (speed walking according to my kids and hubby haha) I have taken the time to enjoy walking and looking at nature more, there is so much to see when you are walking and not rushing by missing the leaves on trees or the buzzing sound of the bees in the trees or bushes. Saying hello to people as you walk by instead of saying excuse me,  you’re in my way or I’m on your right.

We have moved again in those 5yrs to another city, which has it’s pros and cons like any place you live in but when you have lived in small rural areas for off and on 20yrs being in a city is great for just grabbing something to eat or just stopping in the mall just to browse, or getting to go to the Movie theatre, to the Y to exercise or join classes, all kinds of things you can do in a city. Then again it can be a con, spending more money, getting fat because you are eating out more, buying things that you probably don’t need but you buy just because you want it. But the pro of living here especially where we are is the scenery, we are literally only 10 houses away from the Coulees and it is so beautiful. Another pro is you don’t have to drive an hour or two to get to a city to get all the things you need.

Anyways, I am just rambling on, time to move on to the next thing that has changed. I have changed careers, I no longer work in the Administrative world. I have my own little business now, I am currently a Spiritual Healer, Reiki Practitioner, Birth & Postpartum Doula. I started my little business over a year ago and started in my home for a while but I decided to move and rent a space. I moved into a space Mar 1 of this year but only got to work for a few weeks since we were shut down due to Covid 19. It was going so well too! I cannot wait until I get to go back to help give healing to people. However, I have been working on little projects to keep me busy for now until I go back. I cannot wait to share those later.

Well, I think that is it for now, I hope to update a little more often than five years…….so for now I will post this and update my “about me”

 

S

Still alive!! 

Yep! Its true, I’m still alive! I just haven’t written in a while and it’s time to update. Lots happened in 2014.

First, I finally got an appointment to see a genetic counsellor to see if I could get Long QT genetic testing done.

On May 21, 2014 I went to the Alberta Health genetic clinic and talked with Tara the genetic counsellor about my case. With reviewing my medical history and collapse, they didn’t see why I wouldn’t be approved for Alberta Health to pay for the test. They also said it would take a few weeks to find out from the board if I would be approved and if I was then it would take a few months for the results.

After waiting over 2 years to have this test done, I was so happy to have someone help me get this going. I left the clinic emotional because over 2 years since my collapse I was finally going to get answers. When I shared my story to the counsellor I thought I wouldn’t be emotional. But I was. As my good friend once told me emotions are like waves of the ocean, sometimes they will be calm at bay and sometimes rough. It’s true! Some days I don’t even think about it and I’m fine. But when something special happens I get emotional and thankful I’m alive!

For a few weeks after the appointment I started to worry……..in other words I started having anxiety. I worried… what if I wasn’t approved? How would we pay for it? What if I have Long QT? What if I didn’t?? What would be my next step? Would there be another test to find out answers? The list went on and on.

I was up and down. I was beginning to feel anxiety that I had after my collapse, so I decided to see my Dr and ask him if I should see a psychologist. He thought that I should and meet with one he highly recommended. I ended having a phone session with the psychologist and what a difference that made. She was so helpful. She told me that it was normal to have these anxieties with a trauma I had. I felt relieved! I really did think I was going crazy! She said I could call her anytime if I felt I needed to, but after that conversation I knew I wouldn’t need to. I knew there wasn’t anything I could do until I heard from the clinic with the answers.

June 10, I received a phone call from Tara telling me, I’m approved!!!! The board was going to do the test! I was so happy!! Tara said that I had to have my blood drawn so they could test it and we would get the results in a few months. She predicted the fall sometime. I quickly went got my blood drawn that day! I didn’t want to delay it any longer.

On September 4, I found out my results of the test……..it was good news and bad in a way, the good news was that I didn’t test positive for the Long QT gene, and our children/my siblings do not have the gene either. They also will not have to have ICD’s implanted for precautionary measures which is a relief! But the bad news is that there isn’t any other testing for the heart that I can have done and so that gives me no real concrete answers to why my collapse happened. So it gave me mixed feelings not that I wanted to have Long QT but I just wanted to have an answer. After all we are human and we like to know answers.

So in a nut shell, I am still without answers but I am so blessed being alive!!! I’m thankful for a lot of things, we have three beautiful children, a granddaughter who was born on April 9/14 and one more grandchild on the way! What else could I ask for!

2014 was a good year!

not over it

I thought I was doing well living a “normal life”, watching my health doing light exercises. Well apparently, I am not. Why? Well a few months ago, I had to go to the hospital. I was having severe chest pains. At first when I felt this sharp pain I ignored it. I had ignored it because I thought “oh it’s nothing”. ( I know what you’re thinking….stupid why are you ignoring chest pains??) I had ignored this pain for a couple of hours. It was our anniversary, DC and I decided to go out for supper.

While we were at supper I continued to have these sharp pains, it felt like it was shooting directly to the heart. DC saw me jump one time when I had really bad one and asked me if I had the hiccups. I replied no, and said I’ve had these sharp pains in the chest. DC asked me if we should go to the hospital, and I of course said no I’m fine. But DC knew better and said he was taking me to the hospital.

When we finished our supper, I know again…stupid waiting until we finished our supper but I didn’t want to go. I was so nervous. I was being stubborn. When we arrived to the Emergency, the nurse asked what was my reason for coming in. I told her that I had chest pains. She looked at me with a puzzled face, like “really?” I told her that I have a history of heart problems and an ICD. The nurse asked me questions about my symptoms and said to go straight thru the emergency so I could be looked at right away.

We went in and the emergency nurse immediately put me in a room told me to undress so she could put the heart monitor on me. Then she immediately put an IV in, this all happened within 10 mins. I couldn’t believe how quickly they were attending to me. They told me they take any chest pain very seriously and do not take any chances. Well this made me worry, I started to panic and I started to cry because I didn’t want something to happen again. Made me think about when I first collapsed and when I was shocked. All the emotions of that made me cry and I realized I wasn’t over it. I wasn’t over the trauma.

The doctor came in and did an assessment, checked my heart, ordered a blood test to make sure I didn’t have a blood clot forming, sent me for an ECG. Nothing showed any signs of a heart attack or stroke, the next thing the doctor suggested that it might be my lead from the ICD. He said that it might be possible the lead moved and is giving me little electrical shocks.

I started to panic, I looked at DC and just burst in to tears. I did not want to hear that! The doctor said I needed a CT scan done to see if the lead moved but couldn’t do it until the morning when the tech would come in. DC and I went home for a few hours to sleep, which I didn’t get much of. I just of course worried. Finally morning came and we went back to the hospital for the scan.

After a few hours at the hospital I had a cardiologist come look at the scan results and told me that the ICD did not move! I was so relieved!! But we still didn’t know why I was getting sharp chest pains until after one of the nurses said she had similar pains but it was because she was exercising too hard. Well! It was like a doorbell went ding! In my brain and I knew! I knew why I was getting the pain! I was helping DC put boards down for our deck. I remembered, I was holding the board too long and I said to DC to hurry because it was making my arm sore.

The doctor had given me some medication to help with the pain but said if it still persisted I was to come back. After we left the hospital, I couldn’t believe by holding one board would hurt me that much and made me realize, I am still not over it and it will be one day at a time……….

no longer afraid

A year ago today, I learned very quickly life is short.

A year ago today, I changed.

A year ago today was the last time I ran on a treadmill.

A year ago today,  I had faced something I was afraid of.

Death…………..

It’s been a fear since I was little.

A fear…… I am sure I have in common with many people.

A fear…….of not being able to see, hear or talk.

A fear…… of not being able to see my children get married one day or have children of their own.

A fear…… that no one would remember me.

I remember a few years back I had watched an episode of the Montel Williams show. He had a guest named Sylvia Browne on, I know what you’re thinking “the psychic??’ Yes a psychic haha. Anyways, I remember that episode because Sylvia had a person ask why she was afraid of dying and what did it mean? Sylvia said that people are afraid of dying because it’s not existing on earth. When I heard her say that, I thought “ya right”. But since January 24,2012, I have totally changed my opinion on death.

My sister-in-law M sent me a video of my nephews Little A and Mr.T. Little A (who was 2 1/2 at the time) had missed me and wanted to tell me, so M started to record. Little A said he missed me and wanted me to come “out of Manitoba”, and in the back ground  Mr.T (who is 5) had started to sing a song “I miss her so much, I don’t want her to leave our hearts, I love my Auntie S, my Auntie”.  When he sang that, it made me realize, life isn’t just here on earth or about seeing that person all the time. It’s always going to exist in people’s thoughts and in their hearts. That will never “die”.

I believe when it’s your time, it’s your time.

A year ago today wasn’t my time and I am still here for a reason.

I am no longer afraid of not being able to see my children get married and have kids of their own because they will tell their loved ones who I am.

I am no longer afraid no one would remember me because my loved ones will.

I know it’s not going to be easy leaving but I know my family will be okay, and they will always be there for each other. Even thou I am not going to be there physically, I will always be there.

For that I am no longer afraid…..

difficult but healing

I know, I thanked the lifeguards for saving my life back in February, but I got a call on May 9th from the BC Ambulance Services letting me know that they were giving the three Lifeguards, the two Paramedics, and to the person who called 911 the Vital Link Award. I was so happy they were going to give them recognition for saving me. The spokesperson told me the ceremony was the following week and wanted to know if I could attend. I really wanted to see them all get the award. I told the spokesperson that I would get back to her by Friday. I had such mixed emotions during the phone call because of the questions they asked in case I wasn’t able to attend, and told me the media would be there. I know that the media wanted to show the community how proud they were of the Lifeguards, and Paramedics but it was just very overwhelming knowing they were going to be there.

I talked with DC and he thought it would be great to see the Lifeguards again since the last time was emotional. Not that it wouldn’t be emotional again but it may help me feel this way of thanking the Lifeguards/Paramedics could help me move on. I talked with my brother K, he said that if I couldn’t attend he would go on my behalf, but thought it would be good for me to come as well. I even asked my Therapist if it would be in my best interest to go. If I could handle it emotionally. She thought that it was wonderful that they were going to give them recognition for their actions, and asked me how I felt.  I told her I thought it was wonderful too, and wanted to be there. That I was thankful too. But I was really nervous because the last time I went to thank them, I had 2 ATP’s before I had even entered the building!! I didn’t want to be so emotional that my ICD would shock me. Dr. H said to remember about letting all the emotions out, not to hold it in, so that it wouldn’t get my heart rate up. It’s something that I am still learning to do. After I had talked with everyone, I knew I had to be there.

On May 15th I flew to BC to be at the award ceremony the next day. It was difficult to leave DC this time because the last time I left him I almost didn’t come back. DC reassured me, told me not to worry (DC couldn’t attend the ceremony) and I would be alright. Even thou I am sure DC at the time was worried too.  I even remember how scared I was flying that day. We had a bit of turbulence, and I remember thinking to myself “calm down S, don’t panic, don’t get your heart rate up!” I didn’t want to have a shock on the plane! I know it was minor turbulence but when you are nervous you think the worst haha.

K, M and I went to the Rec Centre for the ceremony and I couldn’t believe how many people were there! I wasn’t expecting that many people, I figured there was just going to be the three Lifeguards, the two Paramedics, the person who called 911, BC Ambulance Services and the Media. But there were Paramedics, Lifeguards, staff, family, the Radio and the Media. It was overwhelming, but it was great to see all these people who come to see them get the recognition they deserved!

I was really proud of myself, I only cried once when they talked about my story. After the ceremony was over, I met with one of the Paramedic that attended to me that day. (I didn’t meet the Paramedics when I thanked the Lifeguards back in February). She was more emotional than I was! She thought it was wonderful to see I was doing well! She said in all her 18yrs of being a Paramedic, I was the second person she helped save, survive. I was really happy for her knowing she helped me too. I even met one of the Lifeguard’s family member, and I told them how thankful I was for their daughter that day. The Media asked if I would give them a quote and picture of me with the Paramedic and Lifeguards. I decided to let them have a picture and quote because it would make this story complete. When I left the Rec Centre that day, I felt so good! Like weight had lifted off my shoulders knowing they all got recognition and another way of saying THANK YOU. Having this ceremony for the all the people that day made me know I could start healing………………………….