Yep! Its true, I’m still alive! I just haven’t written in a while and it’s time to update. Lots happened in 2014.
First, I finally got an appointment to see a genetic counsellor to see if I could get Long QT genetic testing done.
On May 21, 2014 I went to the Alberta Health genetic clinic and talked with Tara the genetic counsellor about my case. With reviewing my medical history and collapse, they didn’t see why I wouldn’t be approved for Alberta Health to pay for the test. They also said it would take a few weeks to find out from the board if I would be approved and if I was then it would take a few months for the results.
After waiting over 2 years to have this test done, I was so happy to have someone help me get this going. I left the clinic emotional because over 2 years since my collapse I was finally going to get answers. When I shared my story to the counsellor I thought I wouldn’t be emotional. But I was. As my good friend once told me emotions are like waves of the ocean, sometimes they will be calm at bay and sometimes rough. It’s true! Some days I don’t even think about it and I’m fine. But when something special happens I get emotional and thankful I’m alive!
For a few weeks after the appointment I started to worry……..in other words I started having anxiety. I worried… what if I wasn’t approved? How would we pay for it? What if I have Long QT? What if I didn’t?? What would be my next step? Would there be another test to find out answers? The list went on and on.
I was up and down. I was beginning to feel anxiety that I had after my collapse, so I decided to see my Dr and ask him if I should see a psychologist. He thought that I should and meet with one he highly recommended. I ended having a phone session with the psychologist and what a difference that made. She was so helpful. She told me that it was normal to have these anxieties with a trauma I had. I felt relieved! I really did think I was going crazy! She said I could call her anytime if I felt I needed to, but after that conversation I knew I wouldn’t need to. I knew there wasn’t anything I could do until I heard from the clinic with the answers.
June 10, I received a phone call from Tara telling me, I’m approved!!!! The board was going to do the test! I was so happy!! Tara said that I had to have my blood drawn so they could test it and we would get the results in a few months. She predicted the fall sometime. I quickly went got my blood drawn that day! I didn’t want to delay it any longer.
On September 4, I found out my results of the test……..it was good news and bad in a way, the good news was that I didn’t test positive for the Long QT gene, and our children/my siblings do not have the gene either. They also will not have to have ICD’s implanted for precautionary measures which is a relief! But the bad news is that there isn’t any other testing for the heart that I can have done and so that gives me no real concrete answers to why my collapse happened. So it gave me mixed feelings not that I wanted to have Long QT but I just wanted to have an answer. After all we are human and we like to know answers.
So in a nut shell, I am still without answers but I am so blessed being alive!!! I’m thankful for a lot of things, we have three beautiful children, a granddaughter who was born on April 9/14 and one more grandchild on the way! What else could I ask for!
2014 was a good year!
After all the things that I had gone thru in the beginning of the year, I finally felt that I was going to be alright! I was healing nicely and I had even decided that having an ICD wasn’t going to be that bad. Our oldest C had come down for Spring break to visit, because she didn’t get a chance to see me while I was recovering in BC, or for my father’s death. When C arrived, we had a family photo done so that we could update the old one, plus D had her Grad photos done at the same time. It was so nice to have the 5 of us together.
The next day, I had decided to make lasagna for supper and cherry cheesecake for dessert. While I was preparing the meal, I was standing at the stove making the meat part of the lasagna and I thought I felt something in my chest. I just shrugged it off thinking it was nothing, so I just kept cooking, but then I felt something again. I stopped immediately and knew that I should go and sit down. When I was at the Pacemaker Clinic they told me that no matter what I was doing whether it was cooking, showering, walking etc, and I felt anything I was to find a safe spot and sit down.
I immediately went to the dinning room table and sat down but I didn’t have much time because I had received my first shock! My ICD did what it was supposed to do when my heart needed it. The shock was very quick, and it was not as painful as I thought it would be, don’t get me wrong it did hurt and like someone had kicked me, but not what I was expecting. The jolt to the heart was so powerful it almost threw me backwards and off the chair but DC rushed over and held my legs down so I wouldn’t. I was so thankful that DC was home that day. I was in shock for some time and tried to stay calm because I was afraid it would go off again. When I went to bed that night however was hard, I was scared that it would go off while I was asleep and what if I went to sleep and I didn’t wake up? DC was so thoughtful, he knew that I was struggling with the thoughts of not waking up that he left the bathroom light on.
I had a lot of trouble that night with my heart rate. The more I felt my heart go up the more anxiety I had. The funny part of it all was every time DC got into our bed my heart rate would go up, and I would get hot. This happened at least four times. He would get up get me a cold cloth to put on my forehead, and check my heart rate to make sure I was okay. DC wanted to take me to the hospital but I refused. I am a very stubborn, and I didn’t want to go to the hospital! after all I had just been there.
As I have said before DC is very thoughtful, after all the in and out of bed, he felt that he should sleep on the floor beside me. He slept on the floor with his pillow and one blanket all night. To this day when I think of what he did, I cry because knowing he had shoulder surgery only a few months earlier he slept on that hard floor for me…..
The shock happened on March 23, 2012 @ 2:45pm. I will never forget this day. I will never forget the feelings that I had that day, the hurt, the worry, and most of all………..