After my first shock, I had a very hard time adjusting again. I felt I couldn’t do anything because if I did, I would get another shock. I was afraid to shower, go near the stove or even go up and down the stairs. I didn’t know what made my heart rate go up that day, because all I was doing was standing stirring. How could a heart just suddenly go crazy?? I had called the Pacemaker clinic to let them know I had received a shock. They said do a transmission from home (a transmission is a machine that you plug into the phone jack to read the data from your device) to see if it was in sinus rhythm or not. Did a transmission and I waited……….I didn’t wait long but when you are sitting at home it felt like hours when it was probably only ten minutes.
When they called me back, they told me that they believed I had received an unnecessary shock to the heart. Well!! talk about anxiety!!!! I thought it was a necessary shock and here it wasn’t!?! The Doctor said he believed that my heart did an irregular arrhythmia on the top of the heart and because where my ICD lead is (its on the bottom), it “felt” the arrhythmia and shocked me. His suggestion was to come in to adjust the settings to the device. He believed that the settings were too low and wanted me on a beta blocker to help regulate the heart rate. The clinic said I would come in three weeks, so that the beta blocker would be in my system for a few weeks before I went in for my settings change.
I tried my best to stay calm and do regular things again. Knowing that DC had to go back to work soon and that I would be by myself?? That was difficult. I didn’t have any troubles being by myself before but this time was different. I remember the first day he went, I was afraid to stay by myself. All I could think of was “what happens if I get a shock”?? “what if I need CPR”?? “what if I received a shock and fall, knock my self out”?? So many things were going through my mind that day. When DC came home that evening, I broke down! Most people who know me, knows that I do not get emotional like that! I am a very strong person. I’m the one who is the shoulder for everyone. So this emotion was very new to me, I broke down three times that week.
During the few weeks before I went in to get my settings changed, I didn’t want to shower without anyone in the house, I didn’t go anywhere (plus I wasn’t allowed to drive) I didn’t even go downstairs. I was going through a lot of anxiety, DC could see I was struggling and suggested to see a therapist. A therapist?? I wasn’t sure if I wanted to see a therapist because everything to me was fine. Until one day I knew that I couldn’t be afraid of my heart, and most of all, my mind. DC set an appointment with the therapist the same day for my settings change. What a day!!!!
The therapist appointment was first, looking back at it now, I would have to say even thou I was nervous and didn’t know what to expect. It was the best thing for me. I know that when we met that day, I felt the weight was lifted off my shoulders. I knew I needed to see her again. I had seen her every two weeks for about four months and as I am typing about her, I didn’t realize how much I miss her. She helped me in so many ways. I didn’t see her as a therapist, I saw her as my friend. She taught me that I needed to learn to express my feelings more, if I felt mad – be mad, and if I felt sad and wanted to cry – let it out! Don’t hold it in! Learning to do this is hard for me. I have always kept my feelings aside, don’t get me wrong, I still said my opinions but I tried to never show my “sensitive” side. I didn’t like to cry or cry in front of anyone. ANYONE! even DC haha. I said before, I was the strong one! I helped get people through their tough times but now? it’s time for me. For me. I need to, so that I will be a better person, wife, mother, sister and friend.
The next appointment was at the Pacemaker Clinic to change my settings. When I say settings, I mean they set a range that would monitor the heart rate and the defibrillator would decide when it needed to shock the heart. So mine were set at monitor at heart rate 170, ATP (Anti-Tachycardia Pacing) at 176 and if the ATP didn’t help regulate the heart back to normal then I would receive a shock. They said that it didn’t give me much warning between the monitor and the first ATP, so they changed it. They changed it to monitor at heart rate 155, ATP at 200 and if it didn’t regulate then shock at 200. I know what you’re thinking, 200?? That’s pretty high! Yes but in my case my heart does get over 176 more than normal, so they figured if its going to go that high a lot then I would be shocked for no reason. This made me feel 100% better knowing that I had a better range of monitoring. I felt really good that day, knowing that there is light at the end of the tunnel.
I am learning a lot with this defibrillator and I decided that it will not take over my life. Life is short. I have learned that twice……….
Before I was released from the hospital, February 1st, they had to test my Implantable Cardioverter Defibrillator to make sure it was in the right spot and show me what to look for when or if something were to go wrong. They took me to a room that had a laptop type computer with a wand to ”hook” me up to see how it was functioning. The nurse told me that she was going to tell me what she would be doing step by step so that I knew what to feel or not feel. I was so nervous! I even said to her, “You’re not going to shock me, to test it? are you?” she just giggled and said ”No, they already did that when you were in surgery”. The nurse did some tests and I was getting a little nervous because I hadn’t felt anything yet, but she told me that I was going to feel my heart race. I couldn’t believe that this device could do this! and yet from a computer! I felt my heart pump faster, I was so afraid that she was going to make it go too fast then I would end up having a shock! but when I looked at the computer, it had shown my heart rate was only at 90, I knew it wouldn’t shock me. But I was still scared thou. Then she said that she was going to show me how it would feel if the battery is low or the lead from the ICD to the heart was not in place. She explained that it would feel like when your cell phone was on vibrate, and instead of feeling that vibration in your purse or pocket, I would feel it in my chest. Well let me tell you that was the weirdest feeling I had ever felt! The next weird feeling was the flutter, the flutter that would happen in my chest if my heart rate would go to 176, it would give me an ATP. ATP is Anti-Tachycardia Pacing, which tries to pace the heart to its normal rhythm and if it doesn’t pace to the normal rhythm then it would give me an electrical shock to make the heart go back to its normal rhythm. The nurse then gave me a print out of my “settings” which were that the ICD would watch my heart rate of 170 and at 176 it would give me an ATP and if it didn’t go back into rhythm then it would shock me.
I had stayed with K and M until I was ready to take the journey back to Manitoba. Before I took my journey back to Manitoba, I had yet another day that was going to be difficult. I wanted to meet the people who saved my life at the Rec Centre. I wanted to see the people who went with the voices that I heard that day, and to say “Thank you” for what they did for me. On February 7 th I faced the people who saved me, I cannot tell you the words to describe how I felt that day. How do you Thank someone for saving you? there are no words to completely say “Thank you” to someone who just gave you another chance at life.
Before I had walked in to the Rec Centre, I was very emotional. My emotions were so overwhelming that I had felt a flutter! I had felt my first ATP! I was so emotional that it had caused my heart rate to go high, so I tried to calm my self down and DC was there to hold me while I breathed. I was trying really hard to breathe and keep calm when I felt another flutter!(ATP) I had to keep my heart rate down because I knew if I didn’t, I would receive a shock. I didn’t want that to happen since it was only one week ago that I had the ICD implanted! I had finally calmed down enough to go in the building, they were waiting for me to come into the room where they were waiting. Well! I was so emotional that all I could do was cry. I think it was only for a few minutes that I cried, but it felt like a lifetime. I stood there looking in the faces of the lifeguards that saved my life and just cried, saying “Thank you”. I just didn’t know what else to say. What else would you say? DC, K, and M were there with me and they just let me do what I needed to do. The lifeguards were so humble, they just kept on saying that they were happy to help and it was their “jobs” and that they were happy to see me alive. I told them I understand that it was their “job” but I felt that it wasn’t just their “job”. I felt that they were there for a reason, they were there to save me that day. After I had thanked the lifeguards, I knew that my recovery was going to be alright, that I was going to be alright. I wanted 2012 to start all over and start living, but when I got home something else happened………….
So the last post I said that my brother K said to run a half marathon with him and I said I laughed……… well I did at first then I thought about it. I thought “why not”? Why not do a half marathon? What’s another extra 16.1 km? I only had run up to 5 km but what’s another 16.1 km?? Haha yea I told K that I would think about it, and while I was thinking about it, I started to run to see if I could do it. Well I ran 7 km and thought yea I could totally do this! haha not thinking that there were more km to go.
I ran 7 km for the first part of the month of June, which later I learned that I shouldn’t have done that since I had at the end of my training I was squeezing in my longer runs and it was tough! Anyways, I did do my training and I felt so good! I was getting “addicted” to running! On August 7 th, 2011, I officially registered for the BMO Okanagan Marathon 21.1 km run, I had to register or I wasn’t going to go thru with it.
I flew from Manitoba to British Columbia on Oct 6 th and the run was on the 9th. I was so nervous to run this marathon too but once I got there, saw all the people running for the cause, I calmed down and was very excited! My goal was to try to run the marathon under 2 hr and 45 mins, my chip time ended up being 2 hr 46 mins and I was okay with that! I was just so glad that I had done it and with my brother K too.